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Current Updates | | June 9th, 2008 | I finally got caught up on some pictures so be sure to check those out! You know us, always on the go. I don't even know where to start. We had a wonderful month of May! Lindsey had a wonderful birthday! She was really into opening her presents this year. It was so fun to watch her! We had her birthday at Sprout Studio and she had 13 little friends join her. I made some little prince and pricess party hats for her friends, there is a picture on the "more photos" page. She got a new Pink Cadilac for her birthday (see "more photos"), it is just too darn cute! Thank you for all the birthday wishes for our sweet little princess. I am a little exhasted from our trip so I am really just going to try to keep this short and sweet. We just got home from our trip to the Lighthouse. http://www.lighthousefamilyretreat.org/ We had a wonderful time. Jeff was not able to go with us this time as he is working on a big project at work. So Grandma got to join us. It was a great week but was a little too hot! We had a fantastic time and so many awesome people to thank! I don't even know where to begin! We had a wonderful parents night out provided by an awesome restraunt. You can read about them at http://www.cafethirtya.com/ Dinner was just amazing! Cafe Thirty A cover the bill for all the retreat parents! That is just amazing! We also got free shaved ice from a place in Seaside called Frost Bites, and they were just amazing! A wonderful store in Seaside called FABS donated beautiful white gowns to all the retreat moms and little girls! (see "more photos" for pictures of Lindsey in her white gown) We got to stay in a beautiful home thanks to a wonderful family that donated their home to the lighthouse for the week. The community of Seaside Florida is just amazing! Many places donated food and I know I am going to forget someone. Everyone was just amazing! Not to mention all the wonderful Lighthouse volunteers that donated so much of their time and spent every second of the day making sure the retreat families were taken care of. You guys are the best! We also got to meet another Hepatoblastoma child and compare scars! Jedrek is 1 year old and was diagnosed with Hepatoblastoma when he was just 3 months old! His family attended the lighthouse retreat the same time as us. It was nice to meet another Hepato family in person. Jedrek and his family drove over to our house and stayed the night Saturday and Sunday, then we all headed to Atlanta for the retreat. You can read Jedrek's story here http://www.caringbridge.org/visit/jedrek So now we are home for a couple days, then we are off to Pennsylvania for a couple weeks to visit with Friends and Family. A lot of Jeff's family live in PA and have never met Lindsey. It should be a great time! Then we come home from PA just in time to unpack, wash and re-pack then head to California for a month to visit more family and friends and celebrate grandma's 60th birthday! I can wait for these vacations to be over so we can relax! I would like to give a great big THANK YOU to Helen K. She is a friend of my late Grandma. Thanks to Helen we are able to fly out to California and visit with family. She gave us enough frequent flyer miles to get tickets for all 5 of us. (Unfortunately Jeff will not be able to join us). So thank you again ! We promise to enjoy every minute! The boys are really looking forward to our family reunion at the lake! These is no way we would have been able to get 5 tickets if it was not for you Helen! Thank you so much! So I hope that brings everyone up to date with us! Lindsey is doing awesome and we are so thankful for that! Thank you everyone for your continued prayers! Enjoy all the new photos! I had lots of fun taking the ones of her at the beach. I hope you like them! I also have to say, boy what a difference a year makes. Just looking back at the pictures of Lindsey last year, and also remembering how she was at the Lighthouse retreat last year. She has really come a long way. Last year she was pretty much glued to the side of my leg, this year she was a social butterfly. The highlight of the week at the Lighthouse is Friday night when all the children put on a talent show. It is always wonderful. Last year Lindsey danced, but as soon as she saw me she came running off the stage to me. This year, she kept trying to steal the show from everyone and wanted to be on the stage, all the time. Well I have to say I was a little sad for a minute. We went through the entire talent show, and it was wonderful! But then they called for all the kids to come to the stage for the finale.. I said, "They forgot Lindsey" as she had not done her performance. The finale is usually when all the children sing the Lighthouse Theme song. So all the children are gathering on the stage and I was trying not to look sad that Lindsey didn't do her act. Then the say "and now we need Miss Lindsey" boy I had no idea she was the finale. So she walks up like she owns the place and takes the microphone. I didn't think she was really going to sing a whole song. Oh did she love that microphone. She sang "You are my sunshine" and oh did she do a beautiful job! I could not believe it! She was awesome! I pretty much had tears in my eyes. This song is very special to our family. My grandpa use to sing that to us grandkids all the time when we were little. Also Jeff and Lindsey sing it together quite often. I was sad that Jeff was not there to see Lindsey's first live performance, but at least he will get to see it on the video. I think I will take her to the next American Idol audition, Is there an age limit on that? Hehe... I don't know if I can find a way to get a video on the website, but maybe I can put a link or something. That will have to be in my spare time! Ha! Seriously I will have to try to figure it out because you have to hear her sing! She is so darn precious! Thank you God for this wonderful little girl!
| | | May 30th, 2008 Our baby is 3! | Happy 3rd Birthday to our beautiful little Princess!
| | | May 19th, 2008 Results are in! | Well I have been waiting all morning for the phone to ring. So at 10:27 it rings, and my heart jumps. Lindsey answers the phone and says, "It's for you". My heart jumps again. I expect to hear the doctor, but it was Jeff. I then see the light flashing on the answering machine. I never heard the phone ring. So I tell Jeff I will call him right back. I listen to the answering machine, it was the doctor. The phone must have rang when we were still upstairs. So I call the doctor and we receive wonderful news. Lindsey's AFP is down from 3.1 to 2.1. The Chest X-ray and the ultra sound are completely normal! We get another get out of jail free card for 4 months! Yipppeee!! I fell like celebrating!! A huge thanks to all Lindsey's prayer warriors out there! We are now past the one year mark and the chances of it coming back drop. (Not to zero, but they do drop!) Her next tests will be in September. She will have another AFP test, a BAER test (hearing test) a chest X-ray and a ultra sound. Please send up a couple prayers for Thanksgiving to our wonderful Father in Heaven for answering our prayers! Thanks everyone! Can you believe little Miss will be 3 in just 11 short days! It is very hard to believe our baby is growing so fast!
| | | May 17th, 2008 | Well it has been a very busy couple weeks! This past week was wonderful! On Monday Lindsey and I went to sprout studio to meet the Backyardigans. We waited for a couple hours and were 4th in line to get our picture taken with them, only to find out there was a mix up and they were not going to be there until Tuesday. So we were right back there on Tuesday morning. This time we were 66th in line, but that was ok with us. Lindsey got to meet Pablo and Uniqua. She was not too sure about them. She didn't want to walk up on her own, but was ok if I went with her. Then on Tuesday night we went to the Tennessee Theatre to see the Backyardigans Live Show. It was awesome! She had so much fun. This is the first time I have taken her to a show, I didn't know how well she would do. She loved it! There was a lot of crowd interaction and she was enjoying every minute of it. She was laughing and smiling the entire time. Then on Wednesday we picked up Aunt Michelle from the airport. Thursday morning was testing bright and early for Lindsey. We checked in at 8:15 am. She had an ultra sound and a check x-ray. I have no idea what they are looking at on those machines. I always think I am pretty prepared for these tests, then I get in there and every little thing makes your heart skip a beat and your stomach start doing flips. They had Lindsey flip over on to her belly and did part of the ultra sound on her back. They have never done that before so of course that makes me wonder why. Then we go to the chest x-ray from ultra sound and they do that different then they have before so I am thinking they have found something. Oh it is just an awful feeling. Then from x-ray we are back up to the clinic for some blood work. Lindsey did pretty good. She was blowing bubbles as they drew her blood. She just cried for a minute. Then the doctor came in and said the x-ray and ultra sound look fine. We will have to wait until Monday for the AFP results. We have been pretty busy this week so it helps keep my mind off the tests and the upcoming results. I can't change them anyway. I just pray for true and accurate results. I do pray that it is God's will that she is forever healed. Then on to Thursday night. It was Casey's graduation. I have had a hard time believing that Casey is graduating. Boy does time fly. It was wonderful. Only a couple times did I get teary eyed. My little boy is growing up. It is ever harder to believe that he will be 18 in just a few short months. Wow! Happy Anniversary to Jeff and I today. We spent the day at our Church Carnival. Lindsey had a blast. She enjoyed the bounce house, the games, the food and most of all the music. She was out there dancing away. We ran into Lindsey's oncologist. He said it was nice to see Lindsey running around laughing and talking, and having a good time. She usually doesn't have a very big smile on when we are in the clinic. Lol. Hopefully this upcoming week is not as busy and I will get a chance to post some new pictures. Have a great weekend and I will update with the AFP results as soon as I hear something.
| | | May 2nd, 2008 Another allergic reaction | Well it has been awhile hasn't it. Sorry about that. Last time I updated I was talking about how we "lost" Lindseys pacifier. I am happy to report that we are "nuker" free. It worked out great! Lindsey did so much better than the boys did as far as no longer having a pacifier. We also got Lindsey a toddler bed. It is a princess bed and has a canopy. It is so cute. I thought maybe she would sleep in the pretty bed. No such luck. Other than that, little miss is just keeping us on our toes like usual. Last weekend on Saturday she woke up and said her ear hurt and complained a little. Jeff ended up taking her to an urgent care and she had a very bad ear infection. The doctor was asking how long she had been complaining and Jeff told him just a couple hours, he told Jeff that her ear was pretty bad. So they prescribed some antibiotics and suggested we take her in to her doctor towards the end of the week to make sure it was all clear. He said that many kids that have been through what she has, have a higher tolerance for pain. I guess this could be a good and bad thing, it was bad in this case since her ear was so bad. Poor little girl. So I took her in yesterday and her ear is clear. She went in a 1:00 pm. We were at Riley's baseball game and I took her in to go to the bathroom at about 7:30 pm and as I was pulling her pants back on I noticed a red mark on her left cheek on her bottom. We were in a port a potty so I stepped outside for better lighting. Her entire left cheek was one huge hive. So I picked her up and ran to the car. I took her to Jeff and we looked her over, she just had a couple other small hives. I called the doctors office and got the after hours and left a message. They called me right back and said to watch her breathing for 2 hours and make sure she did not have any breathing problems and make sure the hives did not keep spreading or change in color. We could also give her some benedryl and should take her to her doctor in the morning to have them check her. (I woke up and thought about when I was taking her to the bathroom at the baseball game. I have some Dora seat covers that I attach to the potty and I remembered that I did not even take it off the seat before I ran off. So to whoever used that bathroom after us, I am soooo sorry!) So when Lindsey woke up this mornign the hives were all over from head to toe. (They told us not to give the benedryl first thing this morning so the doctor could see the hives.) So off to the doctors office again. We determined that she had another drug allergy. So we can now add zithromax to the list of drug allergies. So she is taking benedryl and steroids to help her. She is doing pretty good with it but is very tired and itchy. Other than that, she is doing great. We are getting ready for her upcoming tests on May 15th, I promise to post results as soon as I get them! I guess I didn't reallize that it had been so long since I updated. I have not even put an Easter pictures up. Wow. I will have to find those and put them on here. Lindsey had so much fun coloring eggs and hunting for eggs. She looked so pretty in her Easter Dress. The Easter Vigil at Church was awesome! Jeff was baptized, received his first communion and confirmation! I will have to post some pictures of that as well. I was also confirmed. It was a wonderful day. We made our first trip of the season to Dollywood. It was a beautiful day and Lindsey and the kids had so much fun. Aunt Michelle, cousin Matthew and cousin Melissa also went with us. What else have we done in almost the 2 months since my last update? We have been pretty busy with Casey's soccer games, Riley's baseball practice and baseball games and getting ready for Casey's graduation. I can not believe that Casey will be graduating in less that 2 weeks. That really blows my mind. We are also getting ready for Lindsey's 3rd birthday. I can not believe that either. Wow. So as you can see we are staying pretty busy. We also started a group through our church called "Renew" and we meet at our house once a week. It is pretty awesome! I will close with my favorite verse for Lindsey. I have said it before, but I wanted to share something with you. One of my weekly goals for my Renew class was to memorize Matt 7:7. So as I was trying to remember if Knock or ask or seek came first I found a way to help me remember. I took the first letter of each word in the order they came, first is ask so I said A, next is Seek so I said S, then it is Knock so I said the letter K. If you take all 3 of those you get A.S.K. How cool is that! So my new saying is going to be along the lines of Nike's "Just Do It", mine is going to be "Just A.S.K. (Ask, Seek, Knock.). Hope that makes sense. Sometimes it is pretty hard to put thoughts into writing. Matthew 7:7 Ask and it will be given to you, Seek and you will find, Knock and the door will be opened to you. Please keep Lindsey in your thoughts and prayers as we overcome this newest allergic reaction. Also please think of her and say and extra prayer on the morning of May 15th when we go in for her 4 month check up. Also if you can keep Casey in your thoughts and prayers and he finished up the last couple weeks of High School and prepares for the next step of his life, college. Thank you all so much!
| | | March 11, 2008 Life is Good! | Lindsey is doing wonderful! Enjoying life and making up for lost time! She never ceases to amaze me. She is always such a happy little girl and can always bring a smile to my face. She has a mind like a steel trap. She always comes up with the funniest things. I have to tell you about the other night. She was in my room and looked at my bed and said "Ma ma, remember when I went BLAT BLAT (how do you type a vomiting noise? lol) in your bed, I'm Sorry! She just kept saying it over and over. It was pretty funny. She was talking about a couple weeks prior when she got sick and got it all over my bed. She ended up with an ear infection but luckily it was not the flu. She is feeling great now. She has a heart of gold. She is starting to talk so much and her hair is growing more and more every day. It is in her eyes now and I am trying to use this to my advantage, but it is not working too well. I tell her that I can use a clip and get it out of her eyes, nothing doing!! I think our record is maybe a whole hour with a clip in. We are working on it. Last night we "lost" her pacifier and can not find it anywhere in the house. Papa said that mama is mean and that we should "find" it and give it back. She went to sleep last night with out it. When she asked for it, I told her that we lost it. She just said ok and picked up a toy off the floor and said that would be her "nuker" (her word for pacifier). I was shocked! No screaming? Throwing a fit? Keeping me up all night? We really could not find one last night, but I decided since she was so easy going it might just be "lost" for good. Knock on wood. I might be speaking too soon. We will see. Other than that we are doing great and waiting for some warm days to we can go play outside! Thanks for checking in on Little Miss. I hope that our anonymous donor checks Lindsey website. We received a wonderful gift yesterday and want to say THANK YOU! You know who you are and we just want to send out a great big thank you! You are too kind and one day we hope to be in a position to "pay it forward". Thank you for reaching out to our family. Hugs and kisses from all of us to you and your family! We will speak a hugh prayer of thanks to our Father, as he is the only other that knows your name. Thank you from the bottom of our heart! A little note: There is a link on the links page to the scrapbook stuff that I starting selling. If you are a scrapbooker be sure to check it out. The company I am an independent consultant for is Top Line Creations. It is awesome. Right now it is only $20 to sign up to be an independent consultant, and you get a $20 coupon and a 10% off coupon. It is almost like paying you to sign up. Your only requirement to stay active is to place one $25 order in a 6 month period, if you are a scrapbooker, you can do that without blinking an eye! Plus you get all sorts of benefits. They encourage hobbyists as well as business builders. Plus this month they are giving consultants an extra 10% off. (This is on top of your consultant discount.) You can sign up right on my website, or you can contact me for more information. The website is www.topline-creations.com/scrapnow This is a great month to sign up! I will close with Jeff's wonderful words. Jeff wrote this March 10th, 2008 and I wanted to share it with everyone. KNOCKED TO MY KNEES
You love me so, that you humbled me Knowing weakness you knocked me to my knees I came crawling back so that I could plead And I knew at once you'd be there for me
I knew that, come what may, your love is true In my time of need, you'd see me through I knew that in your arms I would find Your sweet embrace and your words so kind
Into your outstretched arms I go And you carry me through the pain and woe Like the love, of groom and bride We sail arm and arm through the raging tide
You place my feet back on the ground And mother earth keeps spinning round Now I walk again and I have so far to go But you are there and this I know
My faith renewed that you are there To carry me through my dark despair Your love is there to light my way Though I truly hope to never stray
If I lose the path I have no doubt That you'll be there to help me out And if those signs, I don't understand I pray I'm knocked to my knees again.
--Jeff Long--
| | | February 18th, 2008 A Busy Month! 1 Year Anniversary for Lindsey! | Well I don't even know where to begin. As you can tell we have been pretty busy. It usually doesn't take me this many days to post an update, especially since we just celebrated 1 year in Remission. Actually I do know where to start. February 14th, 2008 marks one year since Lindsey went into remission. I have to start by pointing you back to a post I made on November 25th 2007 about trying to find the perfect picture to go over our fire place. I will quote that day here so you don't have to search for it. From November 25th 2007 post: "One more thing before I say goodnight. I have to tell you about this picture I found. First I will tell you that Jeff and I have been looking for a picture to go over the mantle in the living room. We have seen quite a few and think they are nice but we know they are just not the "one". I keep telling Jeff that we will know when we find the one. Well I found it on Friday. I went to the Christian Book store looking for a Veggie Tales movie for Lindsey. When I walked in I glanced at the pictures on the wall. My eye caught one, so I went to get a closer look. When I saw it, I started to cry. Really! I don't just mean a tear ran down my cheek, I mean full tears. Wow. I don't even know how to explain it. But when it caused that much emotion I knew this was the picture. I sent Jeff a picture of it with my cell phone. He really liked it too. It is a picture of a little girl, she is about maybe 4 years old or so. She is holding a doll by the arm and is standing at a great big door with her hand on the handle, and peeking in a window on the door. It says "Seek and ye shall find, Knock and it shall be opened" Matt 7:7. When I saw this right away it made me think of Lindsey standing at God's door during the last year. It just touched my heart. I know the people at the store probably thought I had lost my mind. I explained to the cashier how much this picture meant to me, she understood. She also took all Lindsey's information down and said at their store meeting in the morning she would talk about Lindsey and they would pray for her. How awesome is that! By the way, the Veggie Tales Movie was sold out, but I don't think that was what I was doing there anyway. Our God is awesome!" With that being said. Lindsey and I started off her Remission Celebration on February 14th at morning mass. Well guess what the gospel reading was for Lindsey's anniversary? You guessed it Matthew 7 Matthew 7: 7 - 12 7 "Ask, and it will be given you; seek, and you will find; knock, and it will be opened to you. 8 For every one who asks receives, and he who seeks finds, and to him who knocks it will be opened. 9 Or what man of you, if his son asks him for bread, will give him a stone? 10 Or if he asks for a fish, will give him a serpent? 11 If you then, who are evil, know how to give good gifts to your children, how much more will your Father who is in heaven give good things to those who ask him! 12 So whatever you wish that men would do to you, do so to them; for this is the law and the prophets. I can't even begin to explain how I felt when I heard the gospel reading that day. I had to share with everyone at mass. Everyone was so touched by how this all tied together. Father Michael gathered us all together and gave an extra special prayer in thanks of Lindsey's one year Anniversary and for our wonderful faith. It was amazing. Purely Amazing! So to me that was the best part of the day! So after mass Lindsey and I headed to the hospital to hand out Valentines. Lindsey had fun giving all the candy out. We got to see all of our wonderul friends. After the hospital we met Papa for lunch at Ruby Tuesday's. Yum Yum. Then it was off to one of Lindsey's favorite places. I think it is becoming a little tradition on Lindsey's anniversaries. That's right, we were off to Build A Bear. Lindsey got a new puppy and she insisted on naming it Lindsey. So I just added a few words to it and it's "registered" name is Lindsey's 1 Year Anniversary. We had decided to go out to dinner, considering it was Valentines Day we thought most restraunts would be pretty full. So we decided on Chuck E Cheese, I mean who wants to spend Valentines Day at Chuck E Cheese? Apparantley half of Knoxville! It was pretty busy, but that was ok, Lindsey still had a blast. I think her favorite part was giving away free games. Well I doubt she knew that was what she was doing, but she just enjoyed walking around putting tokens in all the games. Grandma made Lindsey a very special Remission Cake, it was a beautiful butterfly. Lindsey then opened her presents and then we headed home after an exhausting day. It was wonderful to say the least. What a great milestone, 1 year down, and 4 to go until we can say Lindsey is CURED! While we were handing out the valentines at the hospital there was a little girl in the waiting room, she was 16 months old. I could not believe that Lindsey was that small when she was diagnosed with cancer. It seems like yesterday, but a lifetime ago. We must be having fun, because time is just flying by. Then on February 15th it was off to the Ronald Mcdonal House to serve dinner. Grandma worked very hard on the main dish and I think I got the easy part. We served Chicken Mexican Casserole, Salad, Corn, Cupcakes, Cookies and Fudge. This RMH is definitely smaller than the one in Cincinnati. It was a little different than the one in Cinci. I guess maybe because the one up there was so much bigger and had so many families they did things a little different. In Cinci we had a set time to eat and the people serving had to do all the clean up. We expected to serve most the families, but I guess most were still at the hospital so we really just had to set up all the food and they would come and eat when they had the chance, then someone at the RMH would put everything away. So now we know! It was still a great night and we did meet a couple families. We hope to do it again soon. It is a wonderful experience, and if you have a RMH in your area you should think about getting a group together and doing it. Well I think that about sums it up. Oh wait, I guess I never posted about some other exciting news! We got a call from Mr Buck at the Lighthouse Family Retreat. We have been accepted to return to the Lighthouse in June! We are so excited and we are all looking forward to it! (By the way I did add some photos from the last week - Be sure to check out the new photos Lindsey received a beautiful outfit from Sue & Wendee - Thank you so much! Wendee's website is SeaminglySweet.Etsy.Com) Until next time!
| | | February 1st, 2008 -- Cancer is like a tornado | Just a quick update. We had to answer a question recently about what it has been like for our family living through childhood cancer. Jeff as we all know is the writer, so I left it to him. We have had many people ask us if they could post this on thier webpages as well. He did such an excellent job that I thought it deserved it's own page. Please see the new page Titled "It's like a tornado." We would love to hear your feedback on it. For those going through childhood cancer, I think they can relate, for those not in this position, I think it can give you a pretty good picture. In 13 short days we will be celebrating Lindsey's 1 year in remission! Wow. I am finally posting some new pictures. Check them out under "More photos", and our new family Picture under the link "About Us".
| | | January 14th, 2008 -- 11 Months Remission | Today is 11 months since Lindsey went into remission. Happy Anniversary Lindsey! Yesterday was a lot of fun. We went to lunch and then went bowling. Lindsey had so much fun bowling. I will have to put some pictures up from that. All in all Brodey had a wonderful Birthday. I finally called to get the results of the AFP test. My heart sank when I called and the nurse said they are in but she will have to have the Doctor call me with the results. I thought that meant bad news. I told her that since he is out of town he told me that someone would give me the results. She said she would check with one of the other doctors. They gave her to ok to give me the results. Lindsey's last AFP was 1.5. Today it is at 3.1. That is perfect and Lindsey is still in remission! Yippeee! Thank you God and all our wonderful prayer warriors! We are now going to sail by that 1 year mark and her chances of relapse will go down! Thank you again! I will get some new pictures posted soon.
| | | January 13th, 2008 No results Yet | First we have to say Happy 12th Birthday to Brodey! We are going to have a fun day celebrating. He wants to go Ice Skating and wants to have lunch at Quaker Steak and Lube. Happy Birthday Brodey! As I said on Thursday I could have called Friday to see if the AFP results were in. I wanted to, but I didn't want to. I really thought I would give in and call. I probably would have been if we had not been so busy running around finishing up applying for a college scholarship for Casey that was due on Friday. It is really setting in that I am going to have a son graduating from High School. Wow. It seems like I was just in High School. Well back to the AFP. I realized at about 5pm that I had not called. It was too late by then. We are having a great weekend and we are not even going to worry about the AFP. Her last AFP was so low that I don't know if we will get one that low again. I know if it goes up at all, even if it is still in normal range, I will want to talk to her doctor and not anyone else. Have a great weekend! I know we will. I will post when we have the results. I also wanted to add that Lindsey was so excited about the new Veggie Tales movie on Friday. I thought there was an early show, so her and I were going to go. I guess since it was the first day in theaters, they didn't have any early shows. I had told her we were going, before I realized this. She talked about "The Pirates who don't do Anything" all day and to anyone that would listen. She had to wear her Larrybob shirt. (Yep, that is what she calls Veggie Tales - Larrybob) Finally the movie started at 7:10pm. She also talked about pop pop all day. (Popcorn - she knows you can't watch a movie without popcorn!) She loved it!! It was so cute. Hopefully not to ruin the movie for you, but the princess is taken away and the pirates try to rescue her. When she was taken Lindsey said "Poor Princess, get her pirates." It was so cute. Then they got her back and Lindsey clapped her hands for about 5 minutes and kept repeating "Good Job Pirates, good job." Then at the end of the movie it was more clapping and her repeating over and over "That was a good movie. I like that movie." It was too cute! Thats all for now! Thank you for your continued prayers!
| | | January 10th, 2008 X-ray Results | I called the doctors office this afternoon to check on the Chest X-ray and the Ultra sound. There was nothing suspicious noted in the chest, the chest x-ray was read as completely normal. The ultra sound had some surgical changes noted but that was it, everything else looked fine. There was no comment as to the livers re-growth so the oncologist is going to check with the radiologist and get back with us. This is wonderful news. Thanks be to God. Now we just have to wait for the AFP results. The oncologist is out of town until Tuesday. So I am trying to decide if I start calling tomorrow for results or wait until Monday. I'll post as soon as I know. Thank you for the extra prayers!
| | | January 9th 2008 Testing Day | Well the day started early, and most of you know that Lindsey is not a morning person. She did absolutely wonderful. Her ultra sound was at 8am. She did awesome! She sat very still and let them look at her belly. I never took my eyes off the screen, even though I had no idea what I was looking at. While I was sitting there I glanced down at Lindsey bracelet. They put it on every time we come for a test or go to the clinic for. It is a little Id bracelet with her name, date and birthday and then like a chart number or something like that. Well her's is pretty small and when I glanced down I only saw 09/08. I really can't explain what I felt. I was thinking to myself, Why would they put her diagnosis date on her bracelet. Then I looked further and noticed that it was not her diagnoisis date, but rather todays date, I just couldn't see the 01. Today's date is 01/09/08. Then when I realized that then end of todays date is 09/08, it just brought back a lot of emotion. Ugh. Then the radiologist came in and said the Ultra Sound looked great. (Mind you this was the same radiologist that we had to fight with back on 9/08/06 to tell us the results of the CT scan. I guess he like to give out the good news, just doesn't do so well with the bad. At least that gave me a little laugh.) Then it was off for a Chest x-ray. Lindsey once again did amazing. They asked if they would need to strap her to the table, or if she would sit up. We didn't know which she would go for. We tried the sitting up and she did wonderful. She sat very still for the test. Thank you all for your prayers, they definitely helped with the testing. It made it all go very smooth. Then up to Clinic. They are remodeling so we almost thought we were in the wrong place. We can't wait till our next visit so we can see all the new stuff! It was great to see everyone at clinic. Everyone commented on how big Lindsey is getting and how much hair she has. We always receive such a warm welcome. Lindsey had an AFP test. She did pretty good with the blood draw, cried a little and refused a band-aid. Other than that, she did great. If we get the all clear from these tests.. I mean When we get the all clear from these tests, Lindsey will receive a 4 month pass this time. We will hit the 1 year mark next month and now instead of every 3 months, she gets to go every 4 months. Also as they have told us in the past, this is a very agressive cancer and if it is going to come back it usually does so within the first year. After 1 year, the chances of it coming back drop, not to zero, but they do drop! I will post when we get the results. It will probably be on Friday or Monday. Thank you for your prayers. We will keep busy this weekend as Brodey will be turning 12. Oh my. Where does the time go?
| | | January 8th, 2008 Merry Christmas, Happy New Year, Upcoming Tests! | Once again time has gone by so fast. Last update I was talking about the sprouts studio membership for Lindsey. We are getting closer, but not quite there. Thank you to everyone that sent money for Christmas to help with her membership, we really appreciate it! I think she will really benefit from this membership. Lindsey lost out on almost a year of her life, it was a very important stage in her life. She isn't really use to sharing (then again what 2 year old is), or playing with other children. This will give her the opportunity to do both, plus have lot of fun. We hope to have her membership by next month. If you are considering a gift for Lindsey's 1 year remission, please consider a gift card for Sprouts Studio, or sending a paypal stating for Sprouts Membership. Thank you.
My last updated left off at us getting ready for the Oncology Christmas Party. We were looking forward to seeing everyone. Well it wasn't really a party, more of a group outing to the movies. We saw the new Disney Movie "Enchanted", it was so cute! The kids also received some presents and got to see "Christmas" (aka Santa) and sit on his lap.
We spent Christmas Eve at Grandmas house. She made a wonderful dinner. It was delicious. We spent the day opening presents, playing games, eating and eating some more. It was great. We spent Christmas Day at home relaxing. The kids all had a wonderful time. I love watching them open their presents. They spent the day enjoying all their new toys. (Me too! Casey got Guitar Hero for Xbox and I got booed off the stage. That was my first time ever. Then after a little practice I was able to match one of Casey's scores.)
On December 27th we went to Dollywood. My niece and nephew came and stayed with us until January 1st. We went to the zoo, the park, the movies, we went shopping and played games. We were very thankful for the nice weather, or at least I was thankful, I mean what would I do with 6 kids locked up in the house for an entire week? We had a quite New Years Eve. Then on the 1st we drove my niece and nephew back to North Carolina. We then spent the week in North Carolina visiting with my sister and family. We had a great time and returned home on January 6th.
On January 7th I received a call from the Oncology Clinic stating Lindsey has an appointment on January 9th at 8:00 am. I like when they call a couple days in advance, that way I don't have to worry too long about the upcoming tests. Lindsey will have a chest x-ray, an ultra sound and an AFP test. This will be her first X-ray and ultra sound since going into remission almost 1 year ago. Please say an extra prayer for her tonight.
Next month will mark the 1 year anniversary of Lindsey going into remission. We have decided that we will go to the Ronald McDonald House and serve dinner to the other families in Lindsey's Honor. Valentines day is already taken, so we will be serving on February 15th. I can't think of a better way to celebrate her remission.
We pray you all had a very Merry Christmas and a Wonderful New Year. Lindsey is doing wonderful! She is getting so big, and her hair is getting so long. She still won't let me put anything in her hair, even thought she comes up to me and says, "My hair is bothering me", as it hangs in her eyes. She always keeps us laughing. She has so many cute little sayings. Sometimes I ask her to do something and she says, "I'm busy right now." I don't know where she comes up with these things. She loves to sing and dance. She will come up and give me a great big hug and kiss and says, "I love you bunches and bunches and bunches." She will also come up and say "I missed you", even if you were just out of the room for a minute. She has a heart of gold and is just so darn sweet. I thank God for everyday I get to spend with her. Thank you all for your continued prayers. I will post more when we get the next test results back. Please also pray that the tests go smooth. This is the time when we actually miss the broviac. It made the tests so easy when they could just put some sleepy juice in her broviac. This will be the first X-ray without the sleepy juice and hopefully she does well with it.
| | | December 14th, 2007 Christmas Ideas | Today was a great day. We went to a new place here in Knoxville. It is called Sprout Studio. Lindsey had so much fun. She played hard for about 4 hours straight. Many have asked about Christmas Presents for Lindsey and I just couldn't think of anything. Well now I have an idea. I really would like to get Lindsey a membership to the Sprout Studio. I think it is a great place for her to get back into the swing of things and learn how to play and share with other children. So if you are looking for an idea for Lindsey, a Sprout Studio Gift card would be awesome! Here is there website, www.playatsprout.com check it out! Lindsey loved it all, but her favorite place was the Water Area. She had so much fun playing in the water and going fishing. Just my luck I finally get a girl and she is going to want to go hunting and fishing and all of that. Hehe.. Jeff has also set up a way to make a donation through paypal directly to Lindsey. You could also use paypal if you want to send some towards her Sprout Studio Membership. Just put in the note area that it is for her gift rather than to help with medical costs. You can use Credit Cards through Paypal as well. Here is a link to that page. Have a great week. I know it is going to be pretty busy. Tomorrow is the Oncology Clinic's Christmas Party. I am sure Lindsey is going to have a lot of fun. It will be nice to see everyone. It has been a long time. (Well really only a couple months but that is a long time when you are use to seeing these wonderful people a couple times a week! Lol)
| | | December 12th 2007 - Feast Day of Our Lady of Guadalupe - 1 Year Surgery Anniversary | Today marks the 1 year anniversary since Lindsey's life saving surgery! One year ago today that awful cancerous tumor was removed from her little body. It was an emotional day. Just thinking back to where we were 1 year ago. I remember it like it was yesterday. She was taken from my arms just after 7 in the morning and I did not get to hold her again until after 4 that night. Thanks to a wonderful surgeon Dr Tiao and all his team the surgery was a sucess. I now sit here one year later with my beautiful baby girl on my lap helping me type. (So excuse any typo's). Today is a reminder of how far we have come in so little time. It is hard to believe her surgery was a year ago. We had no idea what the future had instore for her and as a matter of fact we still don't know. We just know that she is cancer free and pray she remains that way. Through the intercession of Our Lady of Guadalupe Lindsey is here and doing wonderful! I say extra prayers of thanks to our Dearest Mother for watching over Lindsey during surgery and continuing to watch over her. Today will always be a very special day for us. As we were going through all these things with Lindsey I had told myself there would be no tears for what could happen, we were going to be strong and take it day by day. Well I guess I am catching up with all the tears now, because thinking back to the unknown, what a scary feeling. Did we really go through all that? I think I was in robot mode or something. I have people tell me all the time that they don't know how I did it and that they would never be able to handle something like their baby getting cancer. Well to tell you the truth, I would have said the same thing. It is something that I thought I would never have made it through but you do what you have to do. I am no stronger than the next mother. It is something that I wish no mother ever had to go through. We must find a cure! The first of the month was the Lighthouse Christmas Party in Atlanta and it was wonderful! We had a great time and Lindsey was so excited to meet "Christmas". (That is what she calls Santa. It is so cute! Whenever she see's Santa she says, "Look, it's Chritmas." I love it!) She actually sat on Christmas's lap and he gave her a present. What a great way to introduce her to Santa, I mean "Christmas." She thinks Christmas is very nice and he gave her a beautiful baby doll. We had a wonderful time at the party. Lindsey enjoyed all the crafts and goodies, and the boys all enjoyed visiting with their friends. The candles sales are over and went great! Thank you so much to everyone that helped out. We sold 151 candles and made just over $1000. Thank you again to everyone that helped make this years candle sales a great sucess! Lindsey has not been feeling too well for the last few days. I believe she had a little virus. She kept saying her belly hurt. It is so hard but I have to tell myself that it is just a virus. I don't know how long I will have to remind myself that it is not the cancer coming back, it is just a virus. She also complained of her ears hurting. We took her to the doctor and her ears are red. Now after a couple days of antibiotics she is feeling a little better. Thanks be to God and Our Lady of Guadalupe for another wonderful day with Lindsey Ann and we pray for a million more! Hope you all have a wonderful day and thank you for checking in on our little angel.
| | | November 25th, 2007 - General Update | We hope that everyone had a wonderful Thanksgiving. I guess it has been awhile since I updated. We have been having a great time. I didn't really update much in October. We joined Grandma on a little road trip October 25th to visit with my sister Michelle and her family in North Carolina. We had a great time. The kids had a lot of fun playing together. We brought our Halloween costumes and went to a little Halloween Haunted Trail and then to a Halloween Party. Grandma Carol made Lindsey's Halloween costume. It was absolutely perfect. When I put it on Lindsey, it actually brought tears to my eyes. I wasn't going to get her pictures taken this year in her costume, but after seeing it on her, I couldn't help it. I posted a couple of the pictures. She was an absolutely beautiful little angel. A huge thank you to Grandma Carol for all her hard work on this beautiful dress. We headed back home on October 28th. We had a lot of fun carving pumpkins. I will have to post a picture of them soon. They turned out great! Lindsey had so much fun this year on Halloween. Last year she had just received Chemo so we only got to take her to a couple houses that knew her. This year she had a blast! She got the idea of it really quick. She would say "Trick or Treat" then she would say "Thank you", then she would look at us and say "more candy". It was great to see her having so much fun. She had a practice round when we went to an event at the zoo called Boo at the Zoo. They decorated the Zoo for Halloween and set up little booths to go trick or treating at. I think that was on October 21st that we went to that. They had a lot of fun things for the kids to do. So now we are into November. I have been busy with the candle sales. We did pretty good. We ended up selling about 150 candles. Lindsey will receive about $1000 to help with her medical bills. Thank you to everyone that participated. We also received quite a few donations from people that did not want a candle, just wanted to make a donation. You are all so wonderful! Thank you so much for everything you have done for our family. I was passed an envelope at Church and told it was to remain anonymous, it had $50 in it. Thank you so much. You know who you are. I also received an envelope in the mail no return address and no note inside the envelope, just a $100 bill. Whoever you are, just wanted to let you know it arrived and we appreciate it so very much! We also received an envelope with $300. Wow! You are all so awesome! You all know who you are and I wish I could thank you in person but since you want to remain anonymous, I just have to send a great big thanks out to you this way. THANK YOU SO MUCH!!!! In the beginning our candle sales we not doing very well and I was starting to wonder if people thought that since her cancer went away so did the medical bills. I wish that were the case! We don't have as many added expenses as we did this time last year but the medical bills alone will be quite a bit. Lindsey still has regular check ups with her oncologist and will have them for quite some time. In January she will have to have more blood work and CT scan's and such. That means we have to meet a very big medical deductible all over again. So thank you to everyone that has helped us in any way. If you gave $5 or $10 or $100, we thank each and every one of you. It all adds up pretty quick and helps out so very much! We don't know how to ever thank you. We find comfort in knowing that one day we will be able to pay it forward and help someone as you have helped us! Thank you again! We were back in Atlanta the first of November for another fundraiser for the Lighthouse. It was great to see everyone again. It is like a little family reunion. You can read more about The Lighthouse at www.lighthousefamilyretreat.org. Once again we have to thank our Family Partner Ann for opening her home to our family. You are so awesome Ann! Thanks again! We will be heading back to Atlanta next week for the Lighthouse Christmas Party. It will be another little reunion. We look forward to seeing everyone. Then it is Christmas Party at Church, The Clinic, for Lindsey's play groups.. etc. Boy I hope I get a chance to come check in and say hello to everyone. If not, I hope you have a very Merry Christmas. Hehe... I just realized that Christmas is only a month away. Wow. I am looking forward to Christmas this year. I think Lindsey is going to have a blast. Last year she had her surgery 13 days before Christmas. She was feeling pretty good, but still a little sore. This year there will be no holding back. One more thing before I say goodnight. I have to tell you about this picture I found. First I will tell you that Jeff and I have been looking for a picture to go over the mantle in the living room. We have seen quite a few and think they are nice but we know they are just not the "one". I keep telling Jeff that we will know when we find the one. Well I found it on Friday. I went to the Christian Book store looking for a Veggie Tales movie for Lindsey. When I walked in I glanced at the pictures on the wall. My eye caught one, so I went to get a closer look. When I saw it, I started to cry. Really! I don't just mean a tear ran down my cheek, I mean full tears. Wow. I don't even know how to explain it. But when it caused that much emotion I knew this was the picture. I sent Jeff a picture of it with my cell phone. He really liked it too. It is a picture of a little girl, she is about maybe 4 years old or so. She is holding a doll by the arm and is standing at a great big door with her hand on the handle, and peeking in a window on the door. It says "Seek and ye shall find, Knock and it shall be opened" Matt 7:7. When I saw this right away it made me think of Lindsey standing at God's door during the last year. It just touched my heart. I know the people at the store probably thought I had lost my mind. I explained to the cashier how much this picture meant to me, she understood. She also took all Lindsey's information down and said at their store meeting in the morning she would talk about Lindsey and they would pray for her. How awesome is that! By the way, the Veggie Tales Movie was sold out, but I don't think that was what I was doing there anyway. Our God is awesome! Until our next update... A big hug from Lindsey and the entire Long Family! Thank you everyone!
| | | November 16th, 2007 - Site Update | Hello everyone, it's Lindsey's Papa Jeff. (It melts my heart each time I hear her call me her Papa. :) ) Anyhow, I've had a few people that I work with ask about setting up the website so that they could make donations through the site. So, we got the set up today so that people can donate via Credit Card or thier PayPal account online. Here is a link to that page. Thank you all for your continued support and God Bless.
| | | November 6th, 2007 - Candles, Candles, Candles | Candle sales are in full swing. There are 15 different scents, in 3 different sizes 26 oz 22.00 + tax & S&H = $25.14 (burn time 175-200 hours) 16 oz 18.50 + tax & S&H = $21.14 (burn time 120-140 hours) 8 oz 14.50 + tax & S&H = $16.57 (burn time 50-65 hours) I am looking for 15 people this year to help out. If you think you can sell 10 candles, please contact me asap. We will close this on November 20th so we can get them delivered by the first week in December. Just in time for Christmas. So far I have 1 helper, and 2 people that have purchased a candle. Please help if you can. These candles sell themselves and this is an awesome fundraiser. Please email me to help sell, or if you would like to purchase any. Here is a list of the scents: APPLE SPICE Spicy and delicious. Baked apples sprinkled with cinnamon, nutmeg and rich vanilla.
AUTUMN WALK Take a fragrant walk through the enchanting colors and fragrances of fall – colorful leaves are embraced with cooling musk and light florals.
CHRISTMAS PRESENCE The nostalgic Christmas aromas of apples and oranges, accented by clover, nutmeg and ginger.
CINNAMON VANILLA Genuine cinnamon and natural vanilla creamed together to create a combination of sweet and spicy.
CLEAN SHEETS The warm feeling of crisp, clean sheets captured through a breezy blend of fruits and florals with touches of musk.
COZY CHRISTMAS Curl up to the spicy blend of cinnamon, clove, apple, and orange.
CRANBERRY ORANGE A unique blend of tart cranberries, fresh citrus orange, blackberry and warm spicy cinnamon bark. DAYS OF CHRISTMAS Awaken to the memorable blends of pear and apple cider accented by seasonal fruits and spices.
HOLIDAY WREATH Fragrant Siberian Pine and balsam fir mixed with raspberry and vanilla.
MULLED CIDER Add warmth and ambiance to your home with simmering tart cider enveloped with green apple, pineapple and spices.
SUGAR COOKIE Sweet cream, butter, sugar and vanilla baked to a golden perfection. A customer favorite that you must experience for yourself!
POMEGRANATE Experience this best selling fragrance of fresh pomegranate – a fusion of peach, strawberry and green apple scents.
SWEET PEA A fusion of sweet fruits – pineapple and nectarine – softly layered around a heart of organic sweet pea and lilies.
PUMPKIN PIE The perfect aromatic combination of pumpkin, spices and cream, reminiscent of a warm pumpkin pie being pulled from the oven. VANILLA The simple and wholesome fragrance of sweet vanilla beans. Always soothing no matter the time or season. Remember 40% of the profits go right to Lindsey. Thank you so much for your help! I look forward to hearing from you.
| | | October 24th, 2007 | Happy Birthday Papa.. Love Lindsey
| | | October 9th, 2007 Road Atlanta | We got home from Atlanta Sunday afternoon. We had a great time in Atlanta. We drove down Friday night and stayed with our Family Partner from our 1st Lighthouse retread back in June. (Thank you so much Ann!) Then off early to Road Atlanta for the Petit Le Mans. We arrived at 8:30 am. Lindsey and the boys got to go for a ride in a pace care around the track. They said it was really neat! Then the kids got to participate in the flag ceremony. They each held a flag as they did the presentations and announcements right on the track. We were right next to them when they said, "Gentleman, start your engines." Then we had to run off the track. We had a wonderful lunch provided by Chili Pepper Racing. We went for a little golf cart tour around the area. It was a beautiful day. The fundraiser was through http://www.chilipepperracing.org and http://www.hatcherfoundation.org Last year they raised over $34,000 for the Lighthouse. We were so happy to be invited down to take part in such a wonderful event. We also just found out there will be another fundraiser for the Lighthouse in Atlanta, November 4th. So looks like we will head back down to Atlanta. I posted a couple new pictures, some from Road Atlanta and some from Florida. I will post some from our recent trip to the West Coast soon, I promise. I have to find the disc first! Thanks again for checking on Lindsey. Let me know what you think of the new pictures. There is a good one of her showing how much hair she is getting! | | | October 4th, 2007 Test Results are in! | It is really hard to explain how these last couple days have been. We have been having a great summer and enjoying every single minute. Then it all comes to a screeching halt on Monday. One phone call could totally change the path our lives are on at this time. You really can't even take a breath for 3 days until that phone rings with the final results. There are such mixed emotions. On one side we will be jumping for joy and praising our Father in heaven and on the other side we will be turning down another road and asking our Father in heaven for continued guidance and also giving praise for every moment we have had. Well our phone call came this morning and I can now breath much easier. Test results are in! Drum roll please....... Lindsey's AFP is down from 3.5 to 1.5. Way to go baby girl!! That gives us a get out of jail free card for 3 months so to speak! We don't have to go back for tests for 3 more months! That puts us one step closer to that finish line! By her next test we will almost be 1 year in remission!! We also got the hearing test results and thanks be to God her hearing is normal! Thank you for all your continued prayers, and all the extra ones you sent these past few days. We are heading to Atlanta tomorrow to the races for a fundraiser for the Lighthouse Family Retreat. Read more about the lighthouse at www.lighthousefamilyretreat.org.
| | | October 3rd, 2007 No results yet | No results yet! Lindsey and I kept busy all day so I could keep my mind off the pending results. We should definitely have the AFP results tomorrow. I am not sure if we will have the BAER results by then. I will post as soon as I hear. Thank you all for the extra prayers! | | | October 1st, 2007 Florida Update, Hearing Test and AFP | I didn't get to update before we left for Florida. Sorry about that. We had a pretty good flight home from Las Vegas. We flew from Fresno to Las Vegas, then Las Vegas to Knoxville. In Las Vegas they would not transfer my bags from our Fresno Flight to our Knoxville flight. So in Las Vegas I had to get off the plane, gather the stroller, the car seat, Lindsey, the diaper bag and our carry on and proceed to the tram which would take us to the terminal and to baggage claim. There I would collect our 3 very large suitcases put them on a cart and try to push the cart as I pull the stroller with Lindsey, the car seat, the diaper bag and our carry on. From there I would need to go to the ticket counter and check in for the Knoxville flight. I arrive at the counter about 30 minutes before the flight was to leave, (sweat dripping from my head) only to hear the words that they are no longer checking anyone in for the flight. My mouth about hit the floor. Well they could tell I was a little upset so the called and asked if it would be ok if I still came through. They got an approval. So we checked the 3 bags, ditched the cart and proceeded through security and back on the tram back to the gates. We arrived as they were getting ready to shut the doors. Lindsey and I were the last on the plane and out seats were not together. A very nice gentleman gave up his seat so Lindsey and I could sit next to each other. Lindsey did excellent on the plane and slept most of the way home. We then arrived at home and were so happy to see Papa. We then went to collect out baggage only to find that one of the bags had quite a few tears in it. So then it was back to the counter to file a claim for the suitcase. Usually they like to try to argue with you and say what happened to your bag is not covered etc. Well the supervisor just looked at my bag and said, "Let me get a form." Anyway, we made it home safe and sound. We then caught up on some much needed sleep on Monday, did laundry and got ready to leave for Florida. We left for Florida Wednesday after Jeff got home from work. We made it to Greenville Alabama. The next morning we got up and drove the rest of the way. We had a wonderful time in Florida. The houses were just beautiful. They were right on the beach. What a view! I will post pictures soon I promise. The water was beautiful. Last time we were down the water was very rough and Lindsey wanted nothing to do with it. On Thursday the water was so calm and beautiful that she actually got in a played around for a while. It was wonderful! The water was so clear I saw a jellyfish swim right up to me. That is when Lindsey and I got out of the water! The boys had a great time playing in the sand, laughing in the sun! They went up and down the beach looking for Sand crabs. They found buckets full. The also helped some of the adults catch some Blue Crabs. They saw lots of jellyfish, a baby hammerhead shark, lots of crabs, and a stingray. Saturday evening Lindsey started to get sick. This went on for the rest of the night. It was going to be a long drive home. Jeff and I did not get much sleep as she would get sick every hour or so. She felt a little better on Sunday morning. She slept most of the way home on Sunday and only got sick one more time. We arrived home, safe and sound at about 8:00pm Sunday night. To read more about the wonderful Lighthouse retreat please go to www.lighthousefamilyretreat.org . Then as instructed Lindsey was to be sleep deprived for the Baer (Hearing Test). I had to put her to bed at midnight and wake her at 4 am. This was not fun, let me tell you. So back to reality. Back to the Cancer world of tests and all that fun stuff. We arrive at the hospital at 8 am in outpatient registration. We were told that we need to go to the Oncology Clinic to register. I get to the Oncology Clinic and I am told Lindsey has an appointment with them at 9:45 am. I knew nothing of this appointment. Well that is just fine since we are there anyway. So we check in and then head off to get her hearing test. We arrive in Neurology and they tell us that she is going to be sedated. I am confused. I thought they were just going to try to get her to go to sleep for the test that is why I had to deprive her of sleep. I didn't think it was going to work in the first place, but still followed their instructions. Well a long story short, they don't know who sent me the paper work telling me to deprive her of sleep but it was not necessary. Then they tell me that she has to go to radiology to get sedated but Radiology does not have her on the schedule. (this has been scheduled for over 3 months.) Ugh.. Poor Lindsey is about to fall asleep standing up. They told me they could probably fit us in the schedule in about an hour. I said that was fine as long as Lindsey could go to sleep. So she took a little nap and then they came and sedated her and did the hearing test. All went well. They took the blood that the clinic needed while she was sedated so we wouldn't have to mess with her anymore. Then it was off to the clinic for a check up. Lindsey slept through the entire visit. The doctor said it was no fun with her asleep. I told the doctor that I didn't even know we had an appointment today, he said he didn't know that either. Guess they made the appointment while he was out of town and forgot to tell us. So anyway I guess it worked out. I did not have to worry about the upcoming AFP test. They took the AFP today and we should have the results in 2-3 days. We should have the BAER results in 3-5 days. We pray that the AFP is accurate in showing Lindsey is still in remission. We pray that the BAER is accurate in showing that Lindsey has not suffered any hearing loss. If we get all clear then we are free for another 3 months. Lindsey will continue to have a hearing test every year at this time. I didn't realize that she could still have some hearing loss from the chemo in the future. I will get some pictures together over the next week from our busy past month and try to get them posted. Thank you for all the continued prayers!
| | | September 24th, 2007 We are home! | We made it home! We are exhausted. I will update more later. We arrived at 6 am this morning (That is only 3 am Pacific time which we have been on for the last 3 weeks.) Just wanted to remind everyone to Dine at Chili's today. All the proceeds go to St Jude. We will be there!
| | | September 21st, 2007 Having so much fun | I don't even know where to begin. I left off with us in Palm Desert. We had a great visit with Aunt Julie. We went shopping, and more shopping (mostly just window shopping as we don't have room in our suitcases) and swimming and more swimming, and enjoyed the beautiful scenery. I got some great pictures of the sunset over the palm trees. I believe the warmest day was 117 degrees. Thursday September 13th we decided we would take Lindsey to Sea World in San Diego. What a wonderful day. We all enjoyed seeing all the great shows. The dolphins are my favorite! The whale show was wonderful as well. Lindsey really enjoyed the penguins. I have some great pictures and will have to post them when I get home. We also we able to meet my Uncle Kelly, Aunt Lisa and cousins Claire and Ava for dinner on Friday night. It was wonderful treat. Then on Friday the 14th we headed to Bakersfield for the weekend. We stayed with Grandpa Mike. We had a great visit! On Saturday Lindsey spent the day with Grandpa Mike and with Cousin Zachary, while Mama, Aunt Barbara, Grandma and Aunt Julie went shopping. Lindsey played very hard and got pretty sleepy towards the end of the evening. She was asking for her pacifier which she calls a "nukers" and Grandpa didn't know what she wanted. When I got to the house she was sitting with Grandpa and was pretty upset. She looked up and me and said "Take your shoes off." I guess she didn't want me going anywhere else! I didn't know that Lindsey knew how to cry but Grandpa said she can, and does it very well. Then Sunday we visited some more and Grandma Susan came home so we got to visit with her as well. Then on Monday the 17th we headed to Salinas. We spent this week visiting with Family and friends. It was a wonderful week. We also received a call that the Lighthouse wants us to come to Florida next week for a retreat. They had a cancellation so they asked some of the prior families if they wanted to come back! We are very excited! Just when I thought we were going to go home and relax for a little bit. We leave for Florida 2 days after returning from California. I hope we are back on East Coast time by then. We are now in Fresno and will be spending the weekend with Family. We fly from Fresno to Vegas on Sunday night and then back to Knoxville late Sunday, early Monday morning. It will be great to see Pa-pa and big brothers. We sure do miss them. Lindsey has been doing great with all the traveling that we are doing. She is enjoying spending so much time with Grandma. She won't let Grandma out of her sight. Like I said we are having a great time and just celebrating life. After hearing of our friend Summers passing, it really reminds you that every minute that we have is precious. We do not know how long we will be here on this earth, and we need to remember to make every minute count. We need to give thanks every day for God giving us that extra time with our Friends and Family. We mourn those who have left this life, but gain comfort in knowing that they are watching over us and that one day we will meet again. Please continue to keep the Curry Family in your thoughts and prayers. www.carringbridge.com/visit/summercurry. | | | September 20, 2007 Rest in Peace Summer | Please keep the Curry family in your thoughts and prayers. Beautiful little Summer earned her angel wings yesterday September 19th at 4:03 pm. We were blessed to meet Summer and her family at the Lighthouse retreat in June. You can visit her carepage at www.caringbridge.com/visit/summercurry. | | | September 10th, 2007 Having a great time on Vacation! | How does time get away from us so fast? We have had another very busy month. It was big brother Casey's 17th Birthday on August 25th, and it was big brother Riley's 9th Birthday on September 4th. Then on September 5th Lindsey, Grandma and I headed to Las Vegas. I wanted to make Lindsey's week a wonderful one. Looking back to one year ago, she was not having so much fun. It is hard to believe that it has been 1 year since we found out Lindsey had cancer. It comes with very mixed emotions for me. I was not sure how the day would be. Am I happy because they found it before it spread, am I sad because I wish she never would have had cancer at all? Do we celebrate? Do we feel sad? So with the mixed emotions I just decided that we would celebrate life and that is what we are doing. We arrived in Vegas on the 5th. We spent it visiting with family and friends. On the 6th we went to Build-a-bear at Plant Hollywood on the Las Vegas Strip. We heard they had an exclusive Las Vegas animal. Well the exclusive was a white tiger and Lindsey was not impressed. So she got a little white and pink poodle and dressed it in an exclusive Las Vegas shirt. It wasn't until we were leaving that we realized her pink poodle had a pink shirt, and a jean skirt, as well as Lindsey. It was adorable. I will be sure to post pictures as soon as I can. After build a bear we went to the outlet mall so Lindsey could ride the carousel horses. I think she rode about 4 times. We heard the Flamingo Casino has a penguin display so on the 7th we went to try to find it. We did see the flamingos and some very large fish, but no penguins. We found out that they had moved to Texas. So we decided to go over to the Mirage Casino and see the dolphin exhibit. Lindsey had so much fun. (Me too, dolphins are my favorite!) They had a baby dolphin that was only 3 months old. It was so cute! We got to see the trainers feed and exercise the dolphins. They were right in front of us, and at one point the trainer had the dolphin move its tail and splash us with water. After we left Lindsey called papa and told him all about the dolphins. She also told him that the dolphins splashed her, it was so cute! September 7th 2006 was the day we found out something was wrong with Lindsey's liver, we just didn't know what. It was the longest day of my life. Then September 8th. One year anniversary of Lindsey's diagnosis. It was a fun day for Lindsey. We took her to Chuck-e-Cheese. She had a ball. She really picked up quick on the games. There was one that was a spider game, and it had lights that would light up and you would have to step on the lights, like they were spiders. Lindsey really liked this game, she must have played it 15 times. As soon as it was over she would run to the table and say "More money". She ran around and had a wonderful time. I enjoyed every single minute of it. She had such a big smile on her face. What a great way to spend the anniversary of her diagnosis, just seeing that beautiful smile. One year ago I had no idea what was on the road ahead. I had no idea how many more times I would be blessed with seeing that beautiful little girl smile, laugh, sing, dance and just overload my heart with joy. So as I said we are just spending this month in celebration of life. We never know where life will take us, we just have to sit back and enjoy the ride as God is our pilot. Sometimes the road will get very bumpy and take lots of sharp turns, but with God behind the wheel and our seatbelts securely fastened we will make it through all those bumps and turns. We left last Vegas yesterday and headed down to Palm Desert. We will be here for a few days and then head up to Bakersfield. Today is my little brothers 30th Birthday. We were able to celebrate a little with him while we were in Vegas. I hope he has a wonderful birthday today. We hope everyone is having a wonderful month. September is Childhood Cancer awareness month. Please do all you can to support and spread awareness this month. At Build a bear, in September, in honor of childhood cancer awareness month, all donations for the purchase of purple satin hearts will be distributed through the Build-A-Bear Workshop Foundation to childhood cancer research and awareness programs! So if you make a build a bear this month be sure to purchase the purple satin heart to go inside your bear. Chili's will be donating their profits on September 24th to St Jude Children's Research Hospital. If you have a Chili's near you, please plan on this for dinner on September 24th. Just another little way that you can help. Check out www.createapepper.com for more information. Another way to help is sending a note to Congress, visit http://capwiz.com/curesearch/issues/alert/?alertid=10267161&PROCESS=Take+Action for more information. It has a letter all ready filled in, all you have to do is add your name and click send. Please do this for Lindsey and all other children fighting cancer. I will leave you with some Childhood Cancer Facts: Each school day, 46 children are diagnosed with cancer. One in 330 children will develop cancer by age 20. Although the 5 year survival rate is steadily increasing, one quarter of children will die 5 years from the time of diagnosis. Cancer remains the number one disease killer of America's children - more than Cystic Fibrosis, Muscular Dystrophy, Asthma and AIDS combined.
| | | September 8th, 2007 Just a year ago | Well, we are going against the norm today. Papa is updating the site instead of Kristen so please excuse me in my allocution. Well... I am not sure how to start this message. It nearly beings me to tears reflecting on it to be honest. It has been almost exactly one year since I got a panicked call at work from Kristen while she was on her way to the hospital to have tests done on our little Lindsey Ann because her liver was enlarged. My beautiful wife did such a good job of fighting off the fear and the tears while she tried to explain what the doctors had said, all while enroute to the hospital. I left work and headed to the hospital trying to remain positive but deep down I knew something had just turned my world upside down... It is so strange... It seems like yesterday and years ago... I am writing this as an update to those who have been supporting us so much through all of this, our angels in the flesh. I am also writing this to those that might've just found our page after being diagnosed so I apologize if I get a little too intense for some. I want to make this a reminder to all of us and an inspiration to those just now visiting. Think of this as a September 11th anniversary for our friends and family. We had effectively just been destroyed and we were stumbling through the smoke, rubble, and confusion trying to make sense of what had just happened to us. For the most part, when we were told that there was a mass in our little 15 month old girl we knew in our hearts what it was though we were loath to admit it. So, the time came and it fell from the mouth of the man whose job I'd never want to have, we were told by a doctor that our little angel had cancer. From there it was a whirlwind. For those that have lived through a hurricane I've never really done it but I'd bet we could share a lot of the same feelings as this hit me and my family. If you are just visiting and newly diagnosed I know you are here searching for answers. I can only say that my family prays for yours and we truly hope that you overcome and that everything works out for you according to your plans and according to the will of God. That is where the answers are found. They are found through a relationship with the true healer in Jesus Christ not in man. Pray and pray hard. Reach out and ask the world to lift up your child in prayer to the healing that can be had in faith because we are all powerless to intercede on behalf of our children. Give it over to faith that things will happen as they are meant to happen according to the will of God. There is nothing more that you can do except to do what he has asked you to do since the day that you were born... Give all things over to him and know that his will shall be done. I can not begin to express my gratitude God and to the people that have helped us through all of this and I can never give enough praise to the Lord for allowing us to keep our little Lindsey Ann among us here on earth for another year. So, we have one year down and four more for a true "cured" sign to be placed in her medical file but we continue to pray that a "Cured" has been placed next to her name in the heart of our lord Jesus Christ. Bless you all for your support, and if you are searching for support please contact us and we will do all that we can to help you through this troubling time. Thank you and God bless you all.
| | | August 15th, 2007 Lindsey's Candle | We had a wonderful day yesterday. Dada made Lindsey a special M & M cake. It had M & M's all over it, Lindsey's favorite. She also got to open some presents, she really liked those. She also made a Cody Penguin from the movie Surf's Up at Build a Bear. We named him Remission Cody. She would not leave the store without a stroller for Cody, so she has another stroller. I also wanted to let you know that Lindsey has a candle named after her. You can view it at http://www.cathyscandles4kids.com/, The candle is available for purchase. I would also like to thank Cathy for her wonderful candles and all that she does for the children. A portion of the profits goes to organizations that support childhood cancer research or that help families in need whose children are battling cancer. Plus you get a wonderful Candle with Lindsey's name on it, plus a little bio. These will make great gifts. The website says that candles that start with the letter L get 15% off this month. I am not sure if Lindsey's candle would be considered to start with an S for Sweet Lindsey's Sour Apple or L for Lindsey's Sour Apple. Thank you again Cathy. If you please an order, please thank Cathy for all that she is doing!
| | | August 14th, 2007--Happy 6 Month Remission Anniversary | I guess it has been awhile. Sorry about the delay. First I was to say Happy Anniversary to Lindsey. Today marks 6 months since I received the call that my baby girl was in remission! It is a wonderful milestone. I can't wait until we are saying Happy 5th anniversary Lindsey! So please join me today to say Happy Anniversary Lindsey and to say an extra prayer of thanks to our Father in Heaven for answering our prayers! Next we want to wish Auntie Barbara a great big HAPPY BIRTHDAY!!! We hope you have a wonderful day! We will see you soon! So what have we been up to? Well we have been enjoying each and every day. I don't even know if I remember everything we have done. My last update was right before we headed to Atlanta. That was on the 20th of July. We spent the weekend in Atlanta and had a wonderful time. The Cure Childhood Cancer Family Picnic was wonderful. We had a great time. They had lots of games and food. We got to see some of our friends that we met at the Lighthouse in June. They had pony rides, and Lindsey wanted to ride. There was a pretty long line and Jeff didn't think she would ride it and didn't want to wait in the line if she was not going to ride. We kept asking if she wanted to ride and she said yes. So we waited in the line. Well Lindsey absolutely loved the pony. They had to take her for 2 rides because she would not get off. She had a great time. We spent the weekend with one of our family partners from The Lighthouse. We thank her so much for opening her home to our very big family. Thank you so much Ann!! We also went got to see some of the other volunteers from the Lighthouse. It was wonderful. On Sunday we went to mass at Northpoint Church with our other family partner Kim and his family. Thank you Kim! This was absolutely amazing. We enjoyed each and every minute. We thought we were at the mall. The parking lot was so big that it was almost intimidating. There were so many people. It was a wonderful experience. Then we went to watch Ann play polo. Lindsey had a great time watching the horses and she and the boys got to sit on them and pet them. It was a great weekend. Then the day after we got home my sister came over from North Carolina with my niece and nephew. We had a great visit. We went to Dollywood on July 24th, and it rained for most of the day, but we still had a good time. We then went out to grandmas house on the 25th and stayed the night. On the 26th it was Grandma's birthday, Happy Birthday Grandma, we got up and made grandma breakfast and spent her birthday with her. On the 31st we went to Dollywood again. We watched the Veggitales show again and Lindsey loved every minute. This time she got to meet Bob and Larry after the show. She liked them from a distance and was not too sure about the large tomato and cucumber that were trying to take a picture with her. I will have to post some pictures. On August 1st Lindsey had her 2-year check up with the pediatrician. We had to wait until we were 6 months post chemo so she could catch up on some of her shots. We switched to the pediatrician that found her tumor. He said she looks great and I told him that he was a big part of that. We are so thankful that he was at work that day back in September. We were so glad that he did not just look in her ears and send us on our way. We are so grateful that he saw Lindsey that day. We are so thankful that he is such a wonderful doctor. She had to catch up on some shots and was not a very happy girl. She weighed in at 28 lbs and 33 inches tall. She is in the 75% for her weight and in the 25% for her height. We have noticed that she is a little shorter then most kids her age, but I think she will catch up. She is doing great with her weight if you ask me. She was right around 22 lbs throughout chemo. She gained 3 lbs in the few months after she stopped chemo. So she has gained an additional 3 pounds. She is starting to eat a wide vareity of things. Some days she barely eats enough to keep a bird alive and other days I don't think I have enough food in the house to feed her. I guess it will all even out. But overall the doctor said she looks wonderful. I think so too! Then on the 7th we had company from Las Vegas, Casey's Godmother, Yolanda and her daughter Andrea. We had a great visit. We went to Dollywood again on the 8th and it was very hot! We still had fun though. We went to the movies and saw Meet the Robinsons. I forgot to say that we found this awesome movie theater on August 5th. The movies were $1.50 each person. It goes up on Fridays and Saturdays to $2.00 a person. They show movies that have recently left the theaters but not available on DVD yet. We saw Shrek 3, it was really cute. This is a great theater especially with the size of our family. We went to the movies again yesterday and saw Surf's Up. It was another penguin movie, I don't think Lindsey liked it as much as Happy Feet but she did enjoy it. We also played miniature golf yesterday. Lindsey had fun picking up all of our golf balls and throwing them in the water, and if we were lucky she would put them in the hole. We had fun and that is all that matters. Then we had to take Yolanda and Andrea to the airport. Lindsey spent the rest of the night saying "Andrea where are you." So I think we are caught up now. I just need to put up some new pictures from our great adventures. I forgot to say that the boys all started school last week. Casey is now a big bad senior at the High School, Brodey just started middle school and is in 6th grade and Riley is on the "big kids" side at the elementary school in 3rd grade. That is right 3 boys, in 3 different schools, this is going to be a fun year. We hope to spend the next couple weeks relaxing and getting ready for our next vacation. Lindsey, Grandma and I will head to Las Vegas on the 5th of September. We just could not pass up the $7 flight to Las Vegas. Lindsey is doing absolutely wonderful. She is talking so much and is so active. I hope everyone is enjoying what is left of summer and living each day to its fullest! We sure are! Thank you for your continued prayers and support. We are so happy to be celebrating 6 months in remission. I just might have to go out and get Lindsey a cake, or make her a cake today! She loves chocolate! Maybe I will make a chocolate cake with M & M's all over it!!! Happy Anniversary baby girl! You have come a long way and have a long way to go. We will all be here every step of the way, holding your hand. | | | July 19th, 2007 | Hope everyone is enjoying their summer. We sure are. I have been down and out for a couple days due to a kidney stone. I am feeling much better, I just wish it would pass soon. Other than that, things are great! We went to the water park, Splash Country, on the 10th. Lindsey had a great time with her little buddy Evan. On the 13th I started working with Lindsey and her pacifier. She is only allowed to have it for naps and bedtime now. She is doing very well with that. Thanks to the kidney stone and some pain medication I decided to go ahead and wean Lindsey from nursing. I kept telling myself that I was just waiting for the next all clear from the doctors. Well we got that a couple weeks ago. So it is time. I thought nighttime would be the hardest but it seems the mornings are the worst for her. Jeff has been taking her to bed so she has been doing well in the evenings. The last 2 mornings I have woke up to being poked and saying "Mama, mama, mama, Milk mama." It just breaks my heart, but I know it is time. I am sure she will do well. I hope I will too. Then on July 15th we took Lindsey and the boys to the zoo. She was not too sure of the animals, but she seemed to have a good time. She really liked the petting zoo. I posted some new pictures. She enjoyed seeing "Happy Feet" (the penguins), but she especially liked the otters. We could hardly get her away from the exhibit. We leave for Atlanta tomorrow for the Cure Childhood Cancer Family Picnic. We are also going to see some of our new friends that we met in Florida last month. It is going to be a great weekend. I forgot to tell you about Lindsey and her Oreos, I put up a cute picture. We just found out that she loves oreos, but only the inside. I took a funny picture of 6 oreos, the inside was all gone and just the shell was left. I don't know how she discovered that she only likes the inside. It was cute. I also posted a cute picture of Lindsey holding my hair up before we donated it to Locks of love. It turned out a little blurry but she was not in the mood for pictures and that is all I got. It is still cute! We want to wish Grandpa Mike a very Happy Birthday tomorrow! Have a great weekend!
| | | July 6th, 2007 | I hope everyone had a wonderful 4th of July. We spent the day at Grandma and Grandpa's. The kids went swimming for a little bit, then we had a community potluck dinner. After that we went back to G'm and G'pa's and wait for it to get dark. Then it was time for our own little firework show. Lindsey was awake for about 5 minutes of it. Poor little girl is still trying to adjust to East Coast time. She woke up as we were finishing up and she was able to do 1 sparkler. She thought it was really neat. So all in all it was a great day. I forgot to say that on Tuesday Lindsey woke up pulling at her ear and crying. So when we went to the doctor I asked him to peek in her ear. He said is was a little red and looked like an outer ear infection, maybe like from swimmer ear. Well we did spend most of the last 3 weeks in the pool or lake so I can understand that. He gave us some eardrops, and she does not like them at all. I think it is feeling better, she has not been pulling on it anymore. So as you know we are waiting for test results. I finally called the doctors office about 1:30pm because I did not want to have to wait the entire weekend. I did not know what doctor was covering for ours so I left a message. Nurse Kim called me back and said that the AFP results are in. Drum roll...... Lindsey's AFP is 3.5. Last test it was a 2. Anything under 6 is normal so Lindsey is still in remission. Thank you all so much for your prayers and a huge Thank You to our Father in Heaven for answering our prayers once again. We do not have to go back to the doctor for 3 more months. I hope everyone has a great weekend. We sure will! Thanks again! | | | June 28th, 2007 | We had a great week in Bakersfield. We spent the week visiting with family. We spent most of the high 90-degree days in the pool. Yesterday we went to Hart Park and fed the ducks and the peacocks. Lindsey fed some of the ducks right from her hand. We all had a great time. You will have to wait a little longer for me to post some pictures. We found out there are some seats available on Sunday's flight so some of us might fly out Sunday and some of us might fly out Monday. I realized today that I am getting use to the cancer free world again. I realized this when my cell phone rang and I looked at the phone number, I thought, "What is this number, it looks familiar." I answered the phone and it was Lindsey's doctor. Normally I would be on that number in an instant wondering if there were test results, etc. I couldn't believe that I almost forgot that was the doctors phone number. It has been nice to not have to see that number for the last 3 months. He was just calling to let us know he was going out of town and we could re-schedule the appointment if we wanted. We are just going to go ahead and meet with him right before he leaves, another doctor will have to give us the results. But I don't think it will be that hard for the doctor to call us and tell us that her AFP is the same and she is still in remission. For this we pray! Thank you all for your continued prayers! We are off to Vegas in the morning and will not have access to update the website. I will update again as soon as I can. Please keep Lindsey in your prayers on July 3rd at 12:15 pm as they draw blood from her. This will be her first AFP test without her Broviac. That means that they will have to use a needle and she is a tough stick! I am not looking forward to that! Thanks again everyone!
| | | June 24th, 2007 | We are now back in Bakersfield California. We had a great time in Salinas visiting with friends and family. Everyone is having a wonderful time. We had to go to Castroville and get some deep fried artichoke hearts. They were so yummy. Lindsey really enjoyed her first deep fried artichoke heart, she can even say artichoke, it is so cute. We had some Jamba Juice thanks to Aunt Mary and Uncle Mark. They were so delicious. The boys asked if they would build a Jamba Juice in Tennessee. We spent one day with Aunt Mary and family at the dairy. Riley got to help cousin Seth feed the cows and he even got to milk the cows. He also feed one of the calves a bottle. He wanted to go back the next day. Lindsey got to pet the one of the calves and she thought that was great. We went to the Monterey Bay one afternoon and rented a Surrey and rode along the bike path. Lindsey sat in the front basket and rang the bell. It was beautiful, we rode right along side of the Ocean. We were going to head back to Bakersfield on Thursday but then we found out it was Relay for Life on Friday. So we stayed an extra day. Lindsey got to walk in the survivor lap. I will post some pictures when I get back home. She thought she was a little princess. Everyone was clapping as the survivors walked their lap, you could tell Lindsey thought they were all clapping just for her. She had such a big smile on her face the entire lap and she was doing a queen's wave to the crowd. She is such a little ham. All the survivors received a medal and a purple shirt and wore them on the survivor lap. I had a couple people come up to me and say that she was too young for a purple shirt. The kids spent most of the day yesterday in the swimming pool. The weather is great. We will spend the week here in Bakersfield visiting with Grandma, Grandpa, Auntie and Family. We will then head back to Las Vegas the end of this week. We are on standby for our flight home. The seats are filling up fast. We hope there will be enough for us to get home on Tuesday since Lindsey has her check up a few hours after we arrive home. Her doctor is leaving for a mission trip and this will be his last day in the office for over 3 weeks. We hope we are able to get on that flight. Please continue to keep Lindsey in your prayers that her follow up test will show that she is still in remission. Thank you again!
| | | June 18th 2007 Vacation | We flew into Las Vegas on Monday the 11th. We had a pretty good airplane ride. Lindsey and the boys were very good. She fell asleep about 15 minutes before we landed. When we were walking to baggage I saw all the hotel people standing there holding signs with the names of the people they were picking up. I said to myself that one time I would like them to be holding a sign with my name. No sooner did I think that, then I spotted my friends daughter Andrea, she was holding a sign up with my name and the kids name. It was so darn cute! Thank you Andrea. From there we headed over to my brothers house and spent a couple days with his family. It was a great visit. The kids had a lot of fun. Then on Wednesday we headed over to California to see Grandma and Grandpa. The boys had not seen them in over 2 1/2 years. We arrived about 9pm and the kids jumped right into the pool. The next day they pretty much spent the entire day in the pool. We had a wonderful time. Then on Friday we headed out to the lake to set up camp. We had quite a crew show up. We had 5 campsites. We had the biggest campsite and we set up 5 tents on it. One night I said, hey how did we end up with all the kids on our campsite, then I realized that we had brought all the kids. We had 11 kids between my family, my brothers family and my 2 friends family. We also inherited one more for the weekend so we had a total of 12 kids on our campsite. The next day was our Family Reunion. It was a wonderful day at the lake spent with family and friends, great food and the beautiful sunshine. Lindsey had a great day on the lake. She fell asleep on the boat before we even left shore. She woke up a little while later and enjoyed the ride very much. She didn't want to get off the boat, she ended up spending most of the day on the boat. We made some great memories. Lindsey did a great job camping for the very first time. She slept very well in the tent. It was fine the first night, the second night was a little cold, but it did not bother her at all. She had so much fun. We all had a great time! Next time we will have to stay a little longer, it seems like just soon after we got camp set up, it was time to take it all down. Sunday we packed up and said goodbye to the lake and headed to Salinas. We will visit with friends and family. The boys have not been to Salinas in about 4 years. Lindsey and I were just here last month, but it was a short visit. It will be nice to have a few days here to try and get to visit everyone. We will head back to Bakersfield at the end of the week and spend a little more time with Grandma and Grandpa and Aunt Barbara and Family. I have re-scheduled Lindsey's follow up appointment. It is scheduled for July 3rd. Please pray that Lindsey remains in remission. Thank you very much!
| | | June 10th, 2007 Home from Florida! | Wow! What an absolutely wonderful week! Everyone had a fantastic time! Even Casey who said "It is going to be boring at the beach". (I think he was going to miss his video games too much. Before we even arrived at the house, Casey said, "When can we go back." He also said he didn't even think about his video games once. I don't even know how to put into words what a great week this was. Let me just first tell you that we drove to Atlanta last Sunday and stayed the night because the bus was leaving for Florida at 7 am on Monday morning. We arrived in Atlanta about 9pm Sunday night, found a hotel, checked in and went up to our room. We got to the room and started to get ready for bed when the boys started asking where everyone was going to sleep. This will tell you how long it has been since we went on vacation as a family, there were only 2 double beds, and there were 6 of us. I guess I never really had to think about that. So I called and asked for a roll a way bed. Well they couldn't put one in our room due to a fire hazard so we had to change rooms. They gave us one with a king size bed, a pull out couch and then brought in a roll a way. So we finally had a place for everyone to sleep. So now we get on the bus at 7 am on Monday and head to Florida. It was a pretty smooth ride, except for the traffic jam that we hit. We arrived in Florida around 2pm. As we pulled in there was a big sign that welcomed all the families. Everyone was clapping and cheering as they announced each and every family as they walked off the bus. They made us feel so special from the moment we arrived. It was an amazing feeling. We had "family partners" assigned to us. Ours were Ann, Kim, Kaci and Kyle. They introduced themselves as soon as we arrived. Then they took our luggage to our house for us. We got checked in, then got some lunch. I would say we got the royal treatment. We definitely were treated like kings, queens, princes and princesses. It was a wonderful feeling. We started each and every day on the beach over looking the beautiful waves and taking in the beautiful rays of sunlight. We would sing and give praise to God for bringing us all together. It was breathtaking. We would then take the children over and drop them off with family partners so they could have breakfast. The parents would head off for "Common Grounds" to meet as a group to get to know each other and discuss our Children's Stories, The children would get together in groups according to their age. This was their "Flip Flop" groups. They played games, went swimming and worked on their talent show acts. We then would get back with our families. Sometimes we would have free time until lunch. We were suppose to have beach olympics almost every day, but the water was a little too rough and there was a Red Flag almost every day stating we could not go in the water. We did get a yellow flag one day and the boys got to swim in the ocean. That had a great time. Lindsey didn't much care for the rough water. She did enjoy playing in the sand and also she really enjoyed eating the sand. We had to stop her all the time from putting big handfuls of sand in her mouth. We would gather as a group for lunch. We did so much I don't even think I could tell you everything. We went swimming at the pool, we played in the sand on the beach, we had a luau, we did beach olympics, we built sandcastles, and the mom's got haircuts and massages. Most of all we made great friends. It was fabulous. I will put up some pictures I promise. Everyone in Seaside Florida is so wonderful. Everyone at the Lighthouse is absolutely the best! These people have the biggest hearts! One day Jeff, the kids and I were just walking around by the beach. We had our shirts on that said "Lighthouse Family Retreat 07" and a gentleman on his bicycle said that he appreciated us and was glad we were there. It was so nice. So many things go into making this week happen for all of our families. So many wonderful people are apart of that. Many of the homeowners in Seaside have donated their homes for the week to the Lighthouse. These homes are just absolutely beautiful and are used as rentals. These homeowners block the week for the Lighthouse and do not charge anything. This is a very nice area, I don't know how much these homes would normally rent for one week, but I can guess that it is a pretty penny! A salon called "Twist" is normally closed on Mondays but they opened just for the Mom's. They donated haircuts and a chair massage to all the moms. We are so thankful for that. I went to the salon knowing I wanted to cut my hair but I didn't know how much. Well when we arrived I was asked if I had thought about Locks of Love and I said yes, but didn't think I could donate because my hair had been colored. Well long story short, I had over 12 inches cut off. I left is all up to Gina, the stylist to cut my hair. She cut off more than I would have ever thought about doing, but I absolutley love it. It is shorter than I have ever had my hair, but It feels so good. It was so nice because it was very warm in Florida the entire week. They had people in Seaside donate sandwiches and ice cream to the families, we also got some very nice t-shirts that say Seaside on them. There is also a restaurant that donated dinner for all of the parents for our "date night". It was absolutely fabulous. The restaurant is called Cafe Thirty A and is owned by Harriet Crommelin. You can view more about them at http://www.cafethirtya.com. The food was just fabulous. We are so thankful to Harriet and the entire staff at Cafe Thirty A. The lighthouse also had a wonderful professional photographer come in and take a family portrait and some individual pictures of the cancer child. His name is Michael Belk. He is absolutely wonderful. There are so many wonderful people that made this such a memorable week. I don't think I could name them all. We thank Melinda for following her dream and making the Lighthouse a reality. Be sure to visit www.lighthousefamilyretreat.org to read more about the Lighthouse. If you know of a childhood cancer family that would enjoy this, please send them the website as well. Or if you know anyone that would like to volunteer to help out please send it to them as well. This is a fantastic program. Like I said we were treated like royalty. Our beds were turned down for us in the evenings, and chocolate kisses were placed on our pillows (which weren't there for long after Lindsey walked into the house), a long with a wonderful little note from our Family Partners. Each morning our beds were made for us and each day our laundry was done for us. All week we were told, "We are not glad that your are here, but we are glad that you are here." That is how we feel. We were glad to be there, but we wish we weren't there. We pray for a cure so that no family will ever need to return to the Lighthouse, except for a little reunion and celebration, but until then we plan to return one day as a family partner to another family with Childhood Cancer. Well it is time to unpack, and re-pack for our trip to California so I better get off of here. I will try to post some pictures soon. I hope everyone is enjoying their summer as much as we are! Thank you for checking in on Lindsey. I will keep you updated with her follow up visit. I am going to have to call and re-schedule since we are going to be in California. We will have an AFP and follow up after we return. Please continue to pray for Lindsey and pray she remains in remission. Thank you again! | | | June 2nd, 2007 Getting Ready for Vacation!! | Yesterday we went to Splash Country for the first time this summer. Lindsey did not like the water at first. It was very cold. Her brother took her on one of the little waterslides and she did not like it. Then after a bit she finally warmed up to the water and was enjoying it. We played in the wave pool and she really enjoyed the lazy river. She even fell asleep on the lazy river, just like she did last year. It was a great day! As you know we were selected to go to the Beach in Florida with the Lighthouse Ministry. You can view more at www.lighthousefamilyretreat.org. We are all so excited! We are to leave everything behind, including computers and cells phones and all our worries. So I am sorry but you won't get any updated until we return. We also just found out that we are going to go to Vegas and California when we return. This time the boys will come with us. Unfortunately, Jeff doesn't even have enough vacation time for this trip to the beach, so he will not be able to join us in Vegas and California. We must say thank you to my brother Toby who was able to get us some airplane tickets. We also thank Grandma Carol. We are looking forward to a family reunion at the lake in California. Well I must pack and get everything ready for our trip. Thank you again Marie for giving us the information about the Lighthouse! We are so excited!
| | | May 30th, 2007 Our baby is 2! | Happy Birthday precious little girl. I cannot believe she is 2 years old. We started the morning at church giving thanks for this beautiful little girl that is celebrating her 2nd birthday. Then we had a get together will some of her little friends. We had an ice cream cake (Thank you Ann, it was delicious) and some rice crispy ice cream cones. It was all delicious. The kids ate and bounced in the bounce house and sang Happy Birthday to Lindsey. We then went and had her pictures taken. She didn't cooperate too well, but I think we got some good ones. She just wanted to do her own thing, imagine that. Then she played at the Burger King play land after dinner and then it was home for more singing and opening presents. We are so thankful for this little girl. We thank you for all the cards and presents that you have all sent. She enjoyed each and every one! The first year of Lindsey's life I wrote to her each and every month just to give a little update on what she had done that previous month. I was looking through it the other day for the first time since she was diagnosed with cancer. It really brought tears to my eyes. I would like to share a little about what I wrote to her on her 1st birthday, one year ago. I started it off by saying " Well it's a good thing you can not see the tears rolling down my face as I write this. How on earth has it been 1 year since we were blessed with you, our beautiful little angel! How wonderful this past year has been. You are the greatest gift I could ever ask for." Then I talk a little about her eating and sleeping habits. I write about how we thought she was just going to skip crawling and go straight to walking, but that she finally decided to crawl at just over 11 months of age. Then I talk about her first Birthday. "What a great way to celebrate your first birthday. To shower you with gifts as you have showered us with love. Like I said I cannot believe my little baby girl is 1. Wow. It has been the best year of my life. You have made it so special for me. There were so many wonderful moments throughout the past year, but I will have to say that the one I cherish the most is the first moment I held my little dream come true in my arms. You will always be my little girl. I love you so much princess. I look forward to all the wonderful years yet to come. You bring such happiness to my life. I hope you grow up to be a wonderful, happy, and beautiful person. I hope all your dreams come true. I hope you look back and always remember our wonderful years together during your childhood. I hope you always remember how special you are and how much I love you. I hope you succeed in whatever you try to accomplish. But most of all I hope you are always happy and always have that beautiful little smile. I will cherish this first year of your life forever! I look forward to all the new memories we are going to make in the upcoming years. My pretty little princess is growing up so fast. I am so happy that I get to watch you grow and learn. I am so thankful that I got to quit work and stay home with you. That made it so much more wonderful! I love you so much my precious little angel. Thank you for being such a wonderful little girl." Now it is one year later and my precious little angel has just turned 2. They say time flies when you are having fun, that means we had the greatest year yet. I didn't even think it could get much better than that first year, but her second year was absolutely fantastic. Even though Lindsey was diagnosed with cancer shortly after her 1st birthday, it was still a wonderful year. Lindsey is such a precious little girl. I thank God each and every day for blessing me with this beautiful little angel. This last year has been so special. I didn't think I could love her anymore than I did that first year, but my love continues to grow each and every day. I feel like my heart is going to explode it has so much love in it. She can always bring a smile to my face. She is a true blessing. Her hair is starting to come in, and she woke up one day and decided she was going to talk. She talks all the time. She says, "I sorry" if she steps on your toe, she says, "Scuse E (excuse me)" if she tries to get by you, she says "Bless you" if you sneeze and she says "Your Welcome" when you tell her thank you. She will blow you a kiss when she is saying goodbye. But most of all she will melt your heart with her beautiful smile. Lindsey loves to sing and she loves to dance. She has very "happy feet". We will have her first check up next month since going into remission. It is a little scary but we look forward to hearing wonderful news. Lindsey fought a long hard battle and we pray that she never has to do it again. We are looking forward to a relaxing week at the beach next week. Thank you again for all the cards and presents for Lindsey and for helping us celebrate her 2nd Birthday. As always we thank you for your continued prayers and support! Here is a poem that Jeff wrote to Lindsey for her 2nd birthday. My little Lindsey girl, you gave me quite a fright. I never thought I'd see so many sleepless nights. You were a bit of a wake up call, a don't forget. A bit of life's been good, but it ain't over yet. The lord knows, I know that now, I won't forget!! And he knows no matter what, my mind is set. I know that he is much greater than I, But I'll fight for those that I love, till the day I die. And don't think for a second, if that day comes to call That you'll be here without me, don't think that at all. For I'll be always with you, you, your ma, and your bros Because the see of me is in you, and it always grows.
| | | May 28th, 2007 Birthday Party | Lindsey had a wonderful day on Saturday. The weather was beautiful (maybe a little too warm). She was surrounded by friends and family. She jumped in the bounce house with some of her friends. We had wonderful decorations thanks to all the kids at Nanny's Daycare. They made Lindsey some beautiful Birthday Poster Cards and we hung them all over the fence. Lindsey picked out Happy Feet as her theme. We all had a great time and we appreciate everyone that came. Lindsey enjoyed all her gifts, but most of all she enjoyed all the attention. Thank you for making it such a special day.
| | | May 22nd, 2007 Home Sweet Home | Well we made it back home. We arrived home late on the 16th. Lindsey was very excited to be back home. She went and woke her brothers up and gave them hugs and kisses (they didn't remember her waking them up). It took quite a few days to get Lindsey back on East Coast time, but we finally did. She is doing great. We are just getting ready for her party this weekend. We are going to have it at our house. We hope you will come and join us. It is a Remission/ 2nd Birthday Celebration. It is Saturday May 26th at 1:00pm. Please drop me a note and let me know if you can join u |
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